Global News: Patient Registry Software Market Valued at $3.61B by 2030
The report "Patient Registry Software Market by Disease (Diabetes, Cancer, Rare, Asthma, Kidney), Product (Drugs, Device), Use Case (Population Health, Research), End User [(Profit: Pharma, Payer, Hospital), (Non-Profit: Govt)] & Region - Global Forecast to 2030" is projected to reach USD 3.61 billion by 2030 from USD 2.25 billion in 2025, at a CAGR of 9.8%. The patient registry software market is growing due to several key factors. There is an increasing demand for real-world evidence (RWE) in healthcare research and policy-making, along with a rising adoption of electronic health records (EHRs). Additionally, there is a growing need to streamline data collection for chronic disease management and clinical research. Government initiatives that promote patient-centered care and disease-specific registries—such as those for cancer, diabetes, cardiovascular conditions, and rare diseases—are also driving market expansion. Furthermore, the shift toward integrated software solutions, cloud-based deployment models, and subscription-based pricing is enhancing market penetration, particularly among hospitals, pharmaceutical companies, and research organizations that seek scalable and cost-effective solutions.
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The disease registries segment accounted for the largest share of the patient registry software market, by registry type, in 2024.
The patient registry software market is categorized by registry type into two main segments: disease registries and product registries. The disease registries segment includes various types such as diabetes registries, cardiovascular registries, cancer registries, rare disease registries, asthma registries, chronic kidney disease registries, and orthopedic registries. There are also registries for other conditions, including ophthalmology, hemophilia, COVID-19, and neuromuscular diseases.
In 2025, the disease registries segment held the largest share of the patient registry software market. This dominance is primarily due to the increasing prevalence of chronic and rare diseases. According to Rare Diseases International (RDI), by 2025, over 300 million people worldwide will be living with a rare disease, which accounts for 3.5% to 5.9% of the global population. This rise in cases boosts the demand for disease registries, as they facilitate early diagnosis, enhance clinical research, and support the development of targeted therapies by providing structured, real-world data on chronic and rare disease populations.
The site-based/clinical data (provider-recorded) registries segment is expected to record the highest CAGR during the forecast period.
Growth in this market segment can be mainly attributed to the reliability, accuracy, and clinical depth of the data recorded by healthcare professionals at the point of care. Hospitals, academic medical centers, and specialty clinics widely adopt these registries to capture structured patient information for outcome tracking, treatment benchmarking, and longitudinal studies. The increasing focus on evidence-based medicine, regulatory compliance, and quality reporting has driven the demand for provider-entered registries. Additionally, integration with electronic health record (EHR) systems allows for the automatic population of clinical fields, which enhances data quality and reduces administrative overhead. Leading registry initiatives, such as the American College of Cardiology’s National Cardiovascular Data Registry (NCDR) and the American Society of Clinical Oncology’s CancerLinQ, utilize site-based registries to provide national-level insights into disease trends, treatment effectiveness, and real-world patient outcomes.
The Asia Pacific is expected to register a significant CAGR during the forecast period.
The Asia Pacific patient registry software market is set to experience significant growth due to advancements in digital health infrastructure, increased clinical research, and rising government investments in healthcare IT, particularly in countries like India, China, Japan, and South Korea. For example, India launched a rare disease patient registry in January 2025 to improve diagnosis and care. In 2022, China's NMPA updated guidelines for medical device software registration, aiding market entry. With large patient populations and growing pharmaceutical R&D outsourcing, there is a high demand for real-world evidence and specific registries. Local regulatory reforms and enhanced collaborations are further driving adoption, making the Asia Pacific a key area for scalable, tech-enabled patient registry solutions.
The main companies operating in the patient registry software market include IBM (US), IQVIA Holdings Inc. (US), Health Catalyst Inc. (US), Oracle (US), UnitedHealth Group (US), Conduent Inc. (US), and Elekta (Sweden).
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